#BElieveTHEreisHOPEforacure
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#BElieveTHEreisHOPEforacure
Signed in as:
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July 18-21, 2025
(Registration opens August 2024)
JW Marriott Orlando Grande Lakes
4040 Central Florida Pkwy
Orlando, FL 32837
The Conference is being held Friday, July 18 - Sunday, July 20, 2025 in Orlando, FL, with an optional LGMD Day at Universal on Monday, July 21. We are encouraging you to make this a great family trip!
In the 2025 conference, we will present updates on the latest research and new information from the pharmaceutical industry with the world's leading biotechs. GRASP-LGMD researchers, also the world's best on LGMD, will present at our event to give firsthand information on clinical trials. We are excited to hear about all the new companies interested in joining our effort to treat LGMD!
The goal of the 2025 International Limb Girdle Muscular Dystrophy Conference is to bring everyone living with LGMD together in an unprecedented number as we renew our commitments to advocacy and treatments! We continue to share the goal with everyone living with LGMD to see treatments get here quickly and safely.
Limb-girdle muscular dystrophy is a very serious, debilitating form of muscular dystrophy that primarily affects the muscle groups of the hips, arms, and legs. Many subtypes also affect cardiac and breathing muscles which may lead to premature death. Though forms vary, most individuals will use a wheelchair or mobility scooter eventually
Limb-girdle muscular dystrophy is a very serious, debilitating form of muscular dystrophy that primarily affects the muscle groups of the hips, arms, and legs. Many subtypes also affect cardiac and breathing muscles which may lead to premature death. Though forms vary, most individuals will use a wheelchair or mobility scooter eventually due to loss of ambulation. There are still no treatments commercially available for patients living with LGMD.
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The International Limb Girdle Muscular Dystrophy Conference is a program and project of the Speak Foundation. To find out more about the Speak Foundation, visit our website at www.thespeakfoundation.com